General Resources

The National Down Syndrome Congress (NDSC) The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. Their vision is a world with equal rights and opportunities for people with Down syndrome. Their purpose is to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

National Down Syndrome Congress
30 Mansell Court, Suite 108
Roswell, GA 30076
(800) 232 NDSC (6372)

The National Down Syndrome Society (NDSS) is a national advocate for the value, acceptance and inclusion of people with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.

National Down Syndrome Society
666 Broadway
New York, NY 10012
(800) 221-4602

The International Mosaic Down Syndrome Association (IMDSA) provides support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome.

International Mosaic Down Syndrome Association
PO Box 354
Trenton, OH 45067
(888) MDS-LINK (888-637-5465)

The Down Syndrome Research and Treatment Foundation (DSRTF) mission is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome in order that they may participate more successfully in school, lead more active and independent lives, and avoid the early onset of Alzheimer’s Disease.

Down Syndrome Research and Treatment Foundation
755 Page Mill Road, Suite A-200
Palo Alto, CA 94304
(650) 468-1668

Down Syndrome Affiliates in Action (DSAIA) is a trade organization which works to support and advance the growth and service capabilities of its member local and regional Down syndrome organizations. It serves to be the conduit of value-driven training, programs, best practices and support for its members.

Down Syndrome Affiliates in Action
PO Box 2122
Bismarck, ND 58502
(701) 425-7129


Global Down Syndrome Foundation – The mission of the Global Down Syndrome Foundation is to significantly improve the lives of people with Down syndrome through research, medical care, education and advocacy.

LuMind Foundation – The mission of the LuMind Foundation is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome.

The International Down Syndrome Coalition (IDSC)  – A valuable partner in the quest to ensure that women have access to free, accurate information about Down syndrome so they can provide truly informed consent when considering pregnancy-related screenings and diagnostic tests.

Nemours/AI duPont Down Syndrome Clinic – The goal of the Down Syndrome Clinic is to maximize a child’s potential by providing coordinated care from a variety of medical and therapeutic specialists all in one place.

Connecting the Dots, A Guide to Finding Services for Children and Adults with Disabilities and Special Health Care Needs in Delaware- a online printable PDF file that contains vital information for families.

Health Care Information for Families of Children with Down Syndrome, A healthcare guide, broken down by age, that provides valuable information pertaining to different age groups- a online printable PDF file that contains vital resources for families from the American Academy of Pediatrics.

Local Resources

  • DS Clinic at AI Dupont
  • Arc of Delaware
  • Easter Seals
  • SODE
  • Autism Delaware
  • Kennedy Krieger Down Syndrome Clinic
  • Parent Information Center Delaware
  • CDS Access Program

New Directions Early Head Start, a program through the University of Delaware: A home-based program serving pregnant women, infants and toddlers and their families in New Castle County, Delaware. They offer: weekly home visits, family and education support services, health and nutrition education, referral services and prenatal education. They welcome children with special needs and would love to be a resource for your family. Contact them at 302-831-0584 for more information.