Healthcare Professionals
Please find below both a prenatal and postnatal referral form that allows you, as a health care provider, to connect your patients with the DSA of DE so we can better support them.
Below are links to resources that physicians, nurses, therapists, or any other healthcare provider may find helpful in their practices relating to Down syndrome.
Discussing Down Syndrome: Physician’s Guide – created to assist physicians facing the challenge of informing parents that a child has or may have Down syndrome.
Brighter Tomorrows – a free, online training module, funded by the Center for Disease Control and Prevention, for healthcare providers on how to deliver a diagnosis in a sensitive manner.
Children’s Down Syndrome Clinic – the clinic located at Nemours/Alfred I. duPont Hospital for Children in Wilmington, Delaware, provides coordinated medical, social, and developmental care for children with Down syndrome.
Teen/Adult Down Syndrome Clinic – the clinic located at Christiana Hospital is not meant to be a primary care clinic but offers a comprehensive, interdisciplinary team to address the specific needs of adults with Down Syndrome.
Clinical Report – Health Supervision for Children With Down Syndrome – these guidelines are designed to assist the pediatrician in caring for the child in whom a diagnosis of Down syndrome has been confirmed by chromosome analysis. Although a pediatrician’s initial contact with the child is usually during infancy, occasionally the pregnant woman who has been given a prenatal diagnosis of Down syndrome will be referred for review of the condition and the genetic counseling provided. Therefore, this report offers guidance for this situation as well.
Research
Down Syndrome Research Center at Stanford School of Medicine
Down Syndrome Research Trust Foundation
Health Care Professionals: DSIA, Down Syndrome Information Alliance